calsfoundation@cals.org
Volunteer for Research Toward Better Future Medical Care
CALS is partnering with medical research program All of Us to host an informational Zoom session on September 10 from 6:30 – 7:00 p.m.
Join us to find out how you can help advance medical health research so that the future of medicine is more closely tailored to our diverse America.
All of Us is a research program from the National Institutes of Health (NIH). It is seeking one million or more people from across the United States to help speed up medical research.
People who join will share information about their health, habits, and what it’s like where they live. A medical treatment that works for a middle-aged Latinx woman with asthma in New York may not be the same treatment that works for a 19-year-old diabetic high school student in Little Rock. But this crucial research can’t take place without All of Us.
The Zoom presentation on September 10 at 6:30 p.m. will introduce the program and explain how your contribution of information to medical research can help countless people and improve our medicine for the future.
This project is affiliated with the U.S. Department of Health and Human Services and has Certificates of Confidentiality to protect your privacy.
“All of Us matters because we all deserve to have a voice in research. Your health isn’t just a list of what goes on in your body. It tells the story of your family genes, your lifestyle, and your community. Sharing this story could help speed up medical breakthroughs for everyone you represent. And, we all have the power to drive this health research—even from home—because it won’t be all of us without you!”
Angie Gonzalez
All of Us, Program Manager, Virtual Ambassador Program
Quick Facts about All of Us
We’re calling on one million people to lead the way toward better health.
What is precision medicine?
Precision medicine is health care that is based on you as an individual. It takes into account factors like where you live, what you do, and your family health history. The goal is to be able to tell people the best ways to stay healthy.
If someone does get sick, precision medicine may help health care teams fi nd the treatment that will work best.
What is the All of Us Research Program?
The All of Us Research Program is a large research program. The goal is to help researchers understand more about why people get sick or stay healthy. People who join will give us information about their health, habits, and what it’s like where they live. By looking for patterns, researchers may learn more about what affects people’s health.
How do I join the All of Us Research Program?
There are two ways to join:
- Visit the All of Us website JoinAllofUs.org.
- Download the All of Us app.
Because the All of Us Research Program is research, you will be asked to complete an informed consent process. This process tells more about what is involved, and the risks and benefi ts of joining.
What will you ask me to do?
If you decide to join All of Us, we will ask you to share different kinds of information. We will ask you basic information like your name and where you live, questions about your health, family, home, and work. If you have an electronic health record, we may ask for access. We might also ask you to give samples, like blood or urine.
How long will the All of Us Research Program last?
All of Us may last for at least 10 years. We hope you will stay involved over time. If you join, you can withdraw at any time for any reason without penalty.
Why should I join the All of Us Research Program?
You will be contributing to research that may improve health for everyone. Here are some examples of what researchers might be able to discover:
- Better tests to see if people are sick or are at risk of getting sick.
- Better mobile apps to encourage healthy habits.
- Better medicine or information about how much of a medicine is right for each person.
What will you do to protect my privacy?
We will take great care to protect your information. Here are a few of the steps we will take:
- Information we have about you will be stored on protected computers. We will limit and keep track of who sees the information.
- We will remove your name and other direct identifiers (like your Social Security number) from your information and replace them with a code.
- Researchers must promise not to try to find out who you are.
- We will tell you if there is a risk to your privacy because of a data breach.
- The All of Us Research Program has Certificates of Confidentiality from the U.S. government. This will help us fight legal demands (such as a court order) to give out information that could identify you.
Please visit JoinAllOfUs.org for more information or call (844) 842-2855.